Resources & Links

Caring Connections – was created by National Hospice and Palliative Care Organization.  Provides easy to understand end of life care education.
www.nhpco.org/learn-about-end-of-life-care

Hospice Foundation of America – An end of life resource that includes downloadable fact sheets and education.
www.hospicefoundation.org

National Family Caregiver Association – Provides resources and education related to caregiving with links to useful agencies.
www.caregiveraction.org

National Hospice and Palliative Organization (NHPCO) – Learn about hospice, advance directives and finding a hospice provider.
www.NHPCO.org

Aging With Dignity – Provides practical information, advice and legal tools to ensure that your wishes and those of your loved ones will be respected and followed through.
www.agingwithdignity.org

American Academy of Hospice and Palliative Medicine – Offers education, a bookstore and resources regarding palliative care.
www.aahpm.org

Association for Death Education and Counseling – Provides education, care of the dying and grief counseling while addressing diversity at end of life care.
www.adec.org

Brownson’s Death, Dying and Caregiver Resources – Resource for nurses, providing links to other websites as well as valuable resources for caregivers.
http://diannebrownson.tripod.com/passages.html

Center to Advance Palliative Care – Clear comprehensive website with palliative care information for patients and families coping with serious and complex illness.
www.getpalliativecare.org

Growth House – Resource for life threatening and end of life care.  A large search engine with access to a comprehensive collection of end of life resources.
www.growthhouse.org

The Hospice Net  – Answers frequently asked questions about hospice to help to know when it may be time to utilize hospice.
www.hospicenet.org

Moyer’s On Our Own Terms – From a series on public television, offers valuable resources about advance directions and end of life care.  Includes personal interviews and various cultural traditions regarding death.
www.pbs.org/wnet/onourownterms/map.html

Pennsylvania Hospice Network – A state organization of hospice providers giving vasic info about access to hospice care.
www.pahospice.org

University of Wisconsin Pain Studies Group – Provides current information regarding opiod analgesics, prescriptions monitoring programs and pain management.
www.painpolicy.wisc.edu

Drugs.com – Provides resources to medication information.
http://www.drugs.com

Songs for the Journey – is a volunteer ministry of music for Lancaster County PA residents who are actively dying (1 to 48 hours prior to death). One or two musicians/singers offer soothing music to comfort the person who is dying and the friends and family who are bedside. There is no charge for this holy service. www.songs4thejourney.org

Guided Angels Ministry – offers recorded music for those who are actively dying. These recordings are the work of a trained and experienced professional therapeutic musician. Her CDs for those who are dying are in use at healthcare facilities around the world and can be purchased off her website.
www.guidedangels.com